Having a child with cancer is one of the hardest things you will ever deal with as a parent. Not only are you filled with worry and concern, you also have to keep track of your child's treatments, medical visits, insurance, and so on.
You and your partner are used to managing your family life on your own, but cancer adds an extra burden. Learn how to get help and support so you can cope more easily. That way you will have more time and energy to be there for your child.
Childhood cancer is tough on a family, but it is also hard on relatives and friends of the family. Let them know that your child is being treated for cancer. Ask trusted family members and close friends for help with household chores or caring for siblings. Having a child with cancer is a crisis in your family, and other people can and will want to help.
You may also want to tell people in your community, at work, school, and religious community. It helps when those around you understand what you are going through. Also, people can help you in different ways. They may have a similar story and can offer support, or they may be able to help you run errands or cover a work shift.
It can be hard to keep everyone updated on what is going on. Repeating news can be tiring. Online e-mails or social networks are a great way to update the people in your life. You can also receive kind words of support this way. You may want to ask another family member to be the point person to update people and let them know what they can do to help. This will allow you to get support without having to manage it.
Once you let people know, do not be afraid to set boundaries. You may feel grateful that people want to help. But sometimes that help and support can be overwhelming. The most important thing for you and your family is to focus on caring for your child and for one another. When talking with others:
Many health care providers and groups are available to help you cope with having a child with cancer. You can reach out to:
Talk with a hospital social worker or a local foundation to get help with services or expenses. Private companies and community organizations can also help with insurance filing and finding money to pay for expenses.
By taking care of yourself, you will show your child how to enjoy what life has to offer.
Do not feel guilty about taking delight in life. It is healthy for your child to see you smile and hear you laugh. That makes it OK for your child to feel positive too.
These websites have online support groups, books, advice, and information about dealing with childhood cancer.
American Cancer Society website. Finding help and support when your child has cancer. www.cancer.org/content/cancer/en/treatment/children-and-cancer/when-your-child-has-cancer/during-treatment/help-and-support.html. Updated September 18, 2017. Accessed October 7, 2020.
Liptak C, Zeltzer LM, Recklitis CJ. Psychosocial care of the child and family. In: Orkin SH, Fisher DE, Ginsburg D, Look AT, Lux SE, Nathan DG, eds. Nathan and Oski's Hematology and Oncology of Infancy and Childhood. 8th ed. Philadelphia, PA: Elsevier Saunders; 2015:chap 73.
National Cancer Institute website. Children with cancer: A guide for parents. www.cancer.gov/publications/patient-education/children-with-cancer.pdf. Updated September 2015. Accessed October 7, 2020.BACK TO TOP
Review Date: 7/21/2020
Reviewed By: Adam S. Levy, MD, Division of Pediatric Hematology/Oncology, The Children's Hospital at Montefiore, Bronx, NY. Review provided by VeriMed Healthcare Network. Also reviewed by David Zieve, MD, MHA, Medical Director, Brenda Conaway, Editorial Director, and the A.D.A.M. Editorial team.
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